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ENGAGE-HD

Supporting Activity Engagement in People with Huntington’s disease: A Phase II Evaluation

Huntington's disease (HD) is an inherited neurological disease, which over time results in progressive problems with movement, thinking and behaviour, and ultimately difficulties in undertaking usual activities of daily living. Keeping active can become very difficult for people with HD given the complex and varied problems that they are faced with on a daily basis. This exploratory randomised, controlled multi-site trial will evaluate the ENGAGE-HD physical activity intervention which is a purpose developed home-based activity programme delivered by a trained physical activity coach.

The programme includes an exercise DVD and a Physical Activity Workbook. People with HD who enrol in the will also be asked to attend 3 research assessments (focussing on movement, thinking and activities of daily living) over a 6 month period.

SEWTU Role

Full Co-ordination

Study Type

Fellowship

Funder

National Institute for Health Research (NIHR)

SEWTU Value

£592603

Status

Open

Themes

NISCHR – Neurodem

SEWTU – Behaviour Change

Study Team

K Hood – SEWTU, Cardiff University

A Rosser

Contact information

Email address
ENGAGE-HD@cardiff.ac.uk

Key data

Status
Running
Start date
Jan. 1, 2013
End date
Dec. 31, 2017
Grant value
£698,174
Chief investigators
Dr Monica Busse
Funding
National Institute for Social Care and Health Research

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